Could You Have
Acute Intermittent Porphyria or AIP?

Recognizing acute intermittent porphyria (AIP) during acute attacks can be difficult because many of the symptoms are also common in other diseases or illnesses.

Answer each question, then click “Next.” You’ll receive personalized information based on your symptoms as well as more detailed information about AIP that you can use to start a conversation with your doctor.

1. Have you ever had any of the symptoms below in the last 6 months?



Step 1 of 5

2. How many “episodes” of symptoms have you had in the last 6 months?



Step 2 of 5

3. Do your symptoms seem to be related to or triggered by:



Step 3 of 5

4. Do you have relatives who have been diagnosed with AIP?
Check all that apply.



Step 4 of 5

5. Do you have relatives who have recurring episodes of symptoms listed earlier in the checklist?
Check all that apply.



Step 5 of 5

Could You Have Acute Intermittent Porphyria?

This page summarizes the symptoms you reported having in the last 6 months. It’s important to understand that having one or more symptoms common to acute intermittent porphyria (AIP) does not mean that you have AIP. Only your doctor can diagnose AIP.

  • Your symptoms in the last 6 months

    • Bullet point list of quiz taker’s symptoms
  • Episodes of symptoms you have had in the last 6 months

    Quiz taker’s number of episodes

  • Your possible triggers for symptoms

    • Bullet point list of quiz taker’s possible triggers
  • Your relatives with diagnosed AIP

    • Bullet point list of quiz taker’s relatives with diagnosed AIP
  • Your relatives with recurring episodes of symptoms

    • Bullet point list of quiz taker’s relatives with recurring episodes of symptoms

Use this information to start a conversation with your doctor
If your doctor thinks you may have AIP, a porphobilinogen (PBG) urine test—done at or near the time of your symptoms—is the first step in diagnosing your condition. During AIP attacks, PBG levels in urine are much higher than normal.


FOR MORE INFORMATION ABOUT AIP

Download this PDF file

NAME ________________________________     DATE ________________________________


Use this information to start a conversation with your doctor. If your doctor thinks you may have AIP, a porphobilinogen (PBG) urine test—done at or near the time of your symptoms—is the first step in diagnosing your condition. During AIP attacks, PBG levels in urine are much higher than normal.